Hazel McHaffie

Best laid plans gang agley

A couple of months ago Professor June Andrews of the Dementia Services Development Centre at Stirling University ordered 600 copies of my novel Remember Remember to distribute to delegates at the DSDC’s 4th International Conference in London. How cool was that!

Well, the conference has just happened. Here’s June blowing out the candle on the anniversary cake with the actor, Simon Callow.5london

I was wheeled in on a meet-the-author-and-get-your-copy-signed basis. And what an experience it turned out to be. On several levels.

Now, I must confess, London doesn’t feature on my list of top ten favourite places – I’m a country bumpkin at heart and all that noise and dirt and frenzy isn’t for me. But the ExCel Centre in the Docklands proved to be a stunning venue – loads of space; joy-of-joys – immaculate loos with never a queue (and believe me that’s a rarity at big conferences); abundant drinks breaks; helpful staff; a chocolate fountain  … ExCellent!

91londonUnfortunately though, there was one serious glitch. In spite of all the careful planning and checking, the books didn’t arrive until lunchtime on the last day. This highly organised team (in pink to make them easily identifiable to those without dementia as well as with) must have been pretty fed up about that, although it was completely outside our control, but to their credit they remained calm and philosophical – at least outwardly.422london

However, the hiccup had an unexpected bonus for me; it meant that I was free to attend sessions on the previous day. Wow! Lots of inspiring things are going on in the world of dementia and it was great to hear about them from the frontline people. Practical advice as well as careful analysis of research findings. A veritable feast.

Just in case you don’t know, age is the strongest known risk factor for dementia. In a week where I am due to celebrate (?) yet another birthday, that’s quite a sobering reality. As my delightful 7-year-old grandson informed me spontaneously, I shall be older than the number of zoo homes around the world for the snow tiger! (Answers on a postcard please.)

I can’t, of course, slow down time, so I’m concentrating on mitigating other risks:
– taking care of my cardiovascular system
– watching my diet
– keeping my mind and body active
– maintaining a strong social network …
It was useful to have them all rehearsed so succinctly, and if I hadn’t been feeling utterly lousy from a bug on the return journey I’d have started exercising in earnest there and then. As it was I was so dizzy and sick I had to lie down all the way. I even had to pack away the book I’d taken for the purpose –The Book Thief by Markus Zusak – a treat I’d been specially saving for this trip. More of that another time.

Signing books

© Tony Marsh Photography

But let me tell you, being in a conference with people who work in the world of dementia is an incredibly uplifting and reassuring experience. This is my second exposure, and as last time, I was blown away by the sheer warmth and empathy of these special folk. En masse they leave a huge impression. As one of the plenary speakers said, they aren’t interested in a love of power; they believe in the power of love. Too true. It’s positively palpable. It was a real privilege to listen to them and already they’re contacting me with comments about Remember Remember. Lots of them started reading as they travelled home on trains and planes – what a heartening picture that conjures up. Others asked for their copies to be dedicated to colleagues and groups and special relatives and friends grappling with the realities of the disease. Every last one of them was so courteous and appreciative. If the book helps them to feel they are not alone, if it enables them to be even more sensitive, to care even better, it’ll have achieved its aim. I’m only sorry our one-to-one conversations were curtailed because in the event there were only three hours left to sign 600 books.

I’m indebted to my altruistic publisher, Luath Press, and to the wonderful staff at the Dementia Services Development Centre, for making this all possible. OK, the plans did go ever so slightly agley*, but the overall experience was fab! (Oh, and special thanks to Tony Marsh – lovely man as well as talented artist – and DSDC for the photos.)

* For the uninitiated: a Scots word for awry taken from Robert Burns’ famous quote: The best laid schemes o’ Mice an’ Men gang aft agley (From ‘To a Mouse’)

PS. Also during this past week, 45 organisations have united to form the Dementia Action Alliance. They say that by signing a National Dementia Declaration they are setting in stone their ‘very real commitment to transform the lives of people with dementia and their carers.’ They’re seeking early diagnosis, adequate support and help, and research towards a cure. All power to their elbow!

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