financial restrictions in NHS
It’s odd how when your mind is steeped in a particular subject you see related things everywhere, isn’t it?
As part of preparing for the publication of Saving Sebastian I’ve been thinking a lot about fertility treatments, the rights and wrongs, benefits and risks, should we-shouldn’t we? Because as well as working on the book itself, I’ve had to bend my mind to the assorted peripheral tasks that dog any writer – publicity and marketing, updating my website, events, that sort of thing. Not nearly as much fun as the creative writing but just as necessary, I’m afraid. Anyway, I was deep into drafting questions for bookclubs, and challenges for teachers and students of related subjects, when lo and behold, two articles jumped out at me.
One was a news item saying that a Brazilian fertility expert – the very one who helped the famous footballer, Pelé, become the father of twins – is suspected of having deceived patients at his Sao Paulo clinic into raising children who were not biologically their own by implanting other couples’ embryos to boost his success rates. Wow!
And why did this leap out and sock me between the eyes? Because in Saving Sebastian, a Nigerian couple have twins through IVF – one black, the other coffee coloured – and there’s a big old stooshie going on in the fertility centre to establish just what went wrong. Was it deliberate? Was it a genuine mistake? Is there something else lurking in the undergrowth? Too bad real life beat me to it, eh? If my publisher had stuck to the original publication date of 1 May my novel would have been out a fortnight before this Brazilian story broke. Heigh-ho.
The other sucker-punch was by Daily Telegraph columnist, Dr Max Pemberton (16 May). He starts by saying he thought long and hard before writing this particular article because he knew he’d attract condemnation. OK, I’m listening, Doc. The gist of his argument – please note his not necessarily mine (I want to keep my powder dry meantime!) is
- the NHS is strapped for cash
- hard decisions have to be made about how to use limited resources
- there is now an expectation that the NHS will provide fertility treatment on demand and the belief that everyone has a right to be a parent
- childlessness is not a disease but a grief based on people being unable to have what they want
- in these straightened times life-threatening and debilitating diseases should take precedence
- therefore, he concludes, ‘IVF is a luxury the NHS just cannot afford‘.
And the relevance of this piece? Well, in Saving Sebstian, Yasmeen and Karim Zair are fighting to have a baby by IVF who is the same tissue type as their son, Sebastian. The little lad has a rare blood disorder from which he will die if he doesn’t get stem cells from a saviour sibling. And already he’s having punishing treatment to keep him alive. At four years of age … imagine! Should they be allowed to have this treatment? There are plenty of people opposing them. What do you think?
Maybe reading the book will help to crystallise your own thinking so you can agree or disagree with Max Pemberton more logically. But in the meantime please do have your say on my blog if your dander is up, steam is exploding out of your ears, and you feel like adding to the debate right now! You can always publish an addendum or a retraction later. Remember …
The man who never alters his opinion is like standing water, and breeds reptiles of the mind (William Blake).