Hazel McHaffie

Portobello Old Parish Church

We’re all in this together

Portobello Book Festival It’s Saturday. It’s raining. Where am I? Yep, at the Portobello Book Festival. Why? Cos I’ve been invited to take part in an event about dementia. (Hardened visitors to this blog will know about my novel on the subject: Remember Remember.)

Today I’m sharing the spotlight with a poet, a doctoral student, and a campaigner. Could be interesting. In the chair is Alison Summers who, as part of a PhD in Creative Writing, has recently written a novel about a young person with dementia (she’s currently on the hunt for an agent). She has the job of firing the questions and keeping us all to time – not easy as it transpires!

On the panel? Tommy Whitelaw who went from being part of a global merchandising operation for the Spice Girls, Kylie and U2 (yep, really!), to being a full-time carer for his mother when she developed vascular dementia. He’s currently touring the country campaigning for better care and understanding of the condition. He’s here to talk about his personal experience, not his brush with fame. Next to him is John Killick, who’s spent decades helping people with dementia express their creativity, the results of which are captured in his recent book, Positive Dementia. He’s one of life’s natural listeners and he’s still kept busy promoting improved ways of caring in all sorts of places. And then there’s me.

Ahah. The introductions establish a common thread: all three panel members have been working actively in the dementia world, using the spoken word, as well as the written – fact as well as fiction – to help raise awareness of the condition and the issues around it.

Perhaps it’s not surprising then that, though we all come from different backgrounds and different disciplines, and we weren’t in cohoots beforehand, a concerted message comes across:  the importance of properly listening to people with dementia and their carers; listening to what they say and what they can only express through their body language or music or even silence. Care based on that kind of compassionate listening will be truly person-centred, respectful and sensitive. The kind of care we would all want for our loved ones.

Cross inside churchThis cross just inside the Old Parish Church (the venue for the session) seems entirely apposite.  Sensitive, responsive care is a form of love for our fellow man.

Blackwell's van

 

 

 

 

 

 

 

Good to see friends from Blackwell’s Bookshop there too with piles of my novels. It still gives me a thrill to see those 3-for-2 stickers on them.

As I walk away from Portobello I’m reminded of Sigmund Freud: One must not be mean with the affections; what is spent of the fund is renewed in the spending itself.

PS. Remember this?

Iron railings

Well, voilà!

Black railings

In spite of the rain and the professional engagements and the time spent with lovely ladies with dementia and all the sundries of everyday life, after four coats of paint, those endless endless railings and gates are now finally FINISHED! Hurrah!! And the tedium of the job gave me oodles of time to plot my talk – this time about Over my Dead Body. Another tick on the to-do list.

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